ALGS Research Grants Call for Applications


Alagille syndrome call for research grant proposals

Full alagille syndrome research grant proposals must be received by the ALGSA no later than 5:00pm US Eastern Time April 15, 2019.

We are pleased to announce that alagille syndrome research grant proposal applications are now being accepted for the ALGSA Research Grant Program for research in Alagille Syndrome.

Policy and Procedure Overview:

The purpose of the ALGSA is to advocate for better treatments and a cure for those with Alagille Syndrome (ALGS). The ALGSA is also dedicated to increasing public awareness of ALGS, supporting research efforts on behalf of the ALGS community, and educating families, friends and healthcare providers about ALGS.

ALGS is a rare genetic condition affecting about one in 35,000 individuals. Both its symptoms and severity are highly variable and substantial research is needed to understand its complexities. For this reason, the ALGSA awards grants to applicants who seek to conduct basic, pre-clinical, translational, and clinical research projects that investigate all aspects of ALGS. The ALGSA is particularly interested in funding research projects that have the potential to accomplish one or more of the following:

  • Identify novel therapies that may significantly improve the quality of life of individuals with ALGS;
  • Address an important or novel research question related to ALGS;
  • Investigate an aspect of ALGS that is less well researched or is a promising new area for research;
  • Promote and encourage ALGS research in young investigators;
  • Complement the goals and objectives of the NIDDK (National Institute of Diabetes and Digestive and Kidney Diseases) funded pediatric liver disease consortium ChiLDReN (Childhood Liver Disease Research and Education Network; www.childrennetwork.org) and make use of clinical data available to the network;
  • Produce preliminary data that would facilitate broader or more substantial funding from agencies, foundations, or corporations in the future;
  • Discover a cure for ALGS.

Eligibility Overview:

To be eligible to apply for research grant funding from the ALGSA, individuals or teams of Applicants must demonstrate the following:

  • Applicant(s) must have a Ph.D., M.D., or equivalent degree;
  • Applicant(s) must currently hold a full-time position at any level (post-doctoral, research scientist, assistant/associate/full professor, etc.) at an academic institution or in the pharmaceutical/biotechnology industry;
  • Applicant(s) will be considered from both the United States and internationally.

Funding Overview: Funding is limited to $5,000 US for one (1) year.

For information on ALGSAndScience Research Grant opportunities, current grant cycle

information and full grant application guidelines, email alagille@alagille.org or visit our ALGSAndScience page.

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