The ALGSA helps hundreds of patients and families affected by Alagille Syndrome each year and in numerous ways, meeting the members of our community wherever they are in their Alagille Syndrome journey. Check out these great testimonies below and the impact the services and resources make. A special thank you to the donors, partners, and community fundraising patients and families who contribute to make funding these programs possible!  

The financial assistance program literally brought me to tears. Parenting a child with a chronic illness takes more resources. The emotional struggle - worry and stress - about my son’s health and well-being has been overwhelming.


The ALGSA program has been a great support – from myself being able to follow on social media and connect with other families, to read stories and not feel so isolated. We have access to so many documents that can support our everyday life as we

Manitoba, Canada

Thank you endlessly for letting us be part of the Holiday Family Gift Adoption Program this year. Due to       illnesses, a large Christmas was not an option. My daughter was screaming happy screams with her gifts…


Video Testimonial



Paula, 11 yrs old



The Christmas program from Alagille Syndrome Alliance helped us so much. We bought our son new school uniforms and paid his school fees to a new school with better hygiene. Our hero is thriving now that we got him to a new school

ALGS Family
Nairobi, Kenya

We welcome testimonials from families, clinicians, scientists, and industry professionals. If the ALGSA has made an impact on you, please consider leaving a testimony.