We encourage patients, caregivers, and families to connect with the ALGSA for a number of reasons. First and foremost, the ALGSA can meet you where you are in your Alagille Syndrome diagnoses and help in many ways you wouldn’t expect. We strive to make connecting with the ALGSA a pleasant experience and hope that patients and their family members leave the conversation feeling uplifted, understood, and more knowledgeable about the available programs and resources. The ALGSA is very involved with medical teams, science labs, drug development, research initiatives, and has meaningful partnerships with institutions, biotech and pharmaceutical companies, rare disease nonprofits, and other organizations that share the same or similar goals. Lastly, we never want ALGS patients and families to feel alone in their experience, therefore, the ALGSA helps individuals build a lasting support system of friends, medical support, and resources. The Alagille Syndrome Alliance team of staff and board are made up of patients, family members, and friends who just “get it”. In the last year, the ALGSA recruited over 50 ALGS patients and families to scientific and research initiatives, over 45 families got help with Christmas, over $65,000 went to help families with financial assistance, and 1500+ personal touchpoints were made with patients and caregivers through email, messaging, and phone support. Our website houses many testimonies on the home page from Alagille families and supporters around the world. Introduce yourself and/or your family via the ALGSA Contact Form! We can’t wait to meet you!