The ALGSA is dedicated to improving the lives of patients and families affected by Alagille Syndrome and accelerating scientific research aimed at (a) understanding how ALGS affects different organ systems, (b) finding treatments, (c) improving outcomes, and in the process adding quality of life for ALGS warriors and their families. As well as leading our own science and research initiatives, we partner with academic and industry researchers, and clinicians working in Alagille or related fields. We are committed to helping advance research and therapeutics development for ALGS, and provide our partners with diverse types of support to help them achieve their goals.

In our partnerships, we do not shy away from problem-solving or getting creative and we always respect confidentiality needs. We wholeheartedly value and foster relationships that open the door for collaboration, knowledge sharing, and networking. Please email us anytime to discuss ideas and current needs at

Types of support offered include:

  • Scientific Research grants
  • Formal partnership with ALGSA to enhance projects and initiatives
  • NIH Grant support letters
  • Speaking opportunities
  • Networking opportunities
  • Seeking out resources
  • Providing patient voice
  • Patient recruitment

Our research partners:

Team Small but Mighty – Importance of Patient and Family Involvement in Fundraising Initiatives Q & A

Learn why ALGS Mom, Erin Hasselberg Lucca, participates in the Fight for a Better Life campaign each year and how she views working in partnership as a parent to advocate and raise awareness for patients and families and the ALGSA. Q. What is your relationship to...

Scientific Meeting on Alagille Syndrome and Research Round Table Event

The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in Alagille Syndrome.

Research Partners