The ALGSA partners to create and shares amazing resources for healthcare professionals made to accelerate understanding of this complex syndrome and associated health problems. Equally important, healthcare professionals need quick access to resources developed to help patients and families in need.
The ALGSA Helps Patients and Families
LIVMARLI® (maralixibat) oral solution is an orally administered, once-daily, ileal bile acid transporter (IBAT) inhibitor approved by the U.S.
ALGS Publications and Texts
There are many great publications and resources pertaining to Alagille Syndrome. We can’t possibly list every one but want to list a vast array of topics under the Alagille Syndrome umbrella to get you started.
Alagille Syndrome Educational Resources for Medical Professionals
FAST FACTS: ALAGILLE SYNDROME This interactive course is designed to teach healthcare providers about the pathophysiology, diagnosis and management of Alagille Syndrome, touching on clinical advances and research directions in the field
The Childhood Liver Disease Research Network (ChiLDReN) Network is a collaborative team of doctors, scientists, nurses, research coordinators, medical facilities, patient cupport organizations and the National Institutes of Health (NIH).
ALGS families are our top priority and you are a pivitol bridge between important resources that may help them beyond what your facility can provide. We offer unique and case-by-case finacial assistance for financial hardship, bereavement, mental health services, continuity of care, and natural disasters. We have programs and events specifically designed to include, educate, encourage, and lift up patients and families in times of need and everyday. Learn more about these resources by requesting a hospital kit for you and/or your staff so you can bridge the gap and offer the patient resources they need.