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Healthcare Professionals

The ALGSA is very involved in science and research initiatives including many initiatives developed and led right here at the ALGSA. In 2024, the ALGSA is developing the ALGSA Scientific Research Network, expanding on areas of research interest within the community of patients and stakeholders, as well, we are building on our ALGSA Collaborative Scientific Research Grant program that you will see grow this is year.

Current Treatments For ALGS Patients

Find current FDA approved treatment options for patients with Alagille Syndrome and clinical trials.

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Participate in GALA Study

The Global ALagille Alliance (GALA) Study is a global initiative to create an international database of clinical, genetic, and laboratory data in children and young adults with Alagille Syndrome (ALGS). The GALA study is led by Principal investigator, Dr. Binita M Kamath….

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Alagille Syndrome Educational Resources for Medical Professionals

The ALGSA Resource Library houses guides and manuals, one-page educational resources and tools, and translated materials.

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ALGSA Patient & Family Resources

ALGSA develops patient and family resources about ALGS and aspects of the disease. Click to find manuals, guides, one-page educational tools and translated materials.

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ChiLDReN Network

The Childhood Liver Disease Research Network (ChiLDReN) Network is a collaborative team of doctors, scientists, nurses, research coordinators, medical facilities, patient cupport organizations and the National Institutes of Health (NIH).
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Request an ALGSA Hospital Binder for Your Team

ALGS families are our top priority and you are a pivitol bridge between important resources that may help them beyond what your facility can provide. We offer unique and case-by-case finacial assistance for financial hardship, bereavement, mental health services, continuity of care, and natural disasters. We have programs and events specifically designed to include, educate, encourage, and lift up patients and families in times of need and everyday. Learn more about these resources by requesting a hospital kit for you and/or your staff so you can bridge the gap and offer the patient resources they need.
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