ALGSAssistance Program

ALGSAssistance is a financial assistance program that helps patients and families affected by Alagille Syndrome in financial hardship. This could be due to hospitalizations, surgeries and procedures, heavy medical appointment schedules, and the effects of living with a heavy burden of disease impacting employment or family finances. Different types of assistance offered include support for 3rd party bills such as rent/mortgage, utility bills, and car note. Also, impeding medical bills and support through bereavement, medication access issues, school and educational needs, and natural disaster support. These applications are processed on a case by case basis one time per year, per family, as funding allows. Please allow up to 3 weeks for processing.

To apply for financial assistance through the ALGSAssistance Program, please use the online application below. Specify exactly what you are asking for, add all associated bills, and provide information as to why you need the support in detail. Incomplete applications and those with no detail, bills attached, or information about current circumstances will not be accepted. The ALGSA uses the detail to accurately assess and measure program usage and success.

Questions? Email alagille@alagille.org.

Application Form