ALGSAccess Program
Improving access to medications, supplements, and services is a priority need for families affected by ALGS. The ALGSAccess Program was created to combat private and government insurance denials for medical care, medications and supplements, equipment, and other needs. Through this program, patients can receive support letters which aid in appealing for approval of VA services, disability, and other needs where related to Alagille Syndrome. If you have questions or need to talk through a denial of coverage, please connect with us via the contact for to the right.
HealthWell Foundation
HealthWell’s Alagille Syndrome Vitamins and Supplements Fund is designed to assist eligible people living with Alagille Syndrome with the full or partial cost-shares associated with vitamins and supplements. We are committed to supporting the ALGS community and the established guidelines around our covered product list are meant to focus on the areas of greatest need for the majority of people living with Alagille Syndrome. Please visit HealthWell’s website to locate the vitamins and supplements in the covered product list and the qualifications to enroll.
Medication Access Patient Program (MAPP)
The ALGSA, in partnership with Tanner Pharma, has created the Medication Access Patient Program (MAPP) to help families in South America with partial assistance for their medication needs that are not covered by health insurance. As a new pilot program in late 2023, the program is currently offered to families in Brazil only at this time, with the intention of expanding to other countries in South America in 2024. Covered products includes many life-sustaining medications, vitamins, supplements, and formulas. To see the covered products, see the application for enrollment to assess the benefit to your family.