ALGS is a complex and sometimes frustrating syndrome. That’s why it’s important that everyone coming here for information leaves feeling they have comprehensive support available at any time. Educate yourself, learn about available resources, and find new friends that understand what you’re going through. Know that you’re not alone in this journey.
Here you’ll discover relevant resources, updates on ALGS research, clinical trials of interest, free materials, and phone support. You’ll find links to social media groups and information about physicians and hospitals working with ALGS patients. Our extensive team of medical and scientific experts and network of volunteers and staff are here to make your rare disease journey a little easier. We want to ensure you’re as prepared as you can be for your future with ALGS.