The latest Links4Life is ready for you. Download it now Latest Links4Life Download Link. Highlights of this issue include info about our #StackingtheOddsforALGS campaign, a call for more board members (please contact us if you want to join our board!), a new edition of Roberta's Ramblings (always a treat), and a profile of our newest board member - Dean Spitzer. If you want to receive a paper copy, please use the contact form on this website to send us a note. Make sure you include your mailing address. Thank you!
To celebrate we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!