The latest Links4Life is ready for you. Download it now Latest Links4Life Download Link. Highlights of this issue include more information about the upcoming symposium, another installment of Roberta's Ramblings and an update on what our busy executive director Cindy Luxhoj has been up to. Get yours today! If you want to receive a paper copy, please use the contact form on this website to send us a note. Make sure you include your mailing address. Thank you!
To celebrate we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!