• Our Mission

    Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.

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  • Apply today for the Alaina Kaitlyn Hahn Celebratory Scholarship

    Alaina Kaitlyn Hahn Celebratory Scholarship for the 2017-2018 academic year

    The Alaina Kaitlyn Hahn Celebratory Scholarship funds the education of high school graduates or GED credential recipients with ALGS who are entering or enrolled in an accredited US university, college or vocational school and choose to pursue higher education in the human biological, medical, or health sciences. This is a $500 scholarship for a single year and is renewable one time, subject to open competition with other applicants, for a total possible award of $1,000.

    Application materials are available below. Applicants can download the PDF or Word versions of the forms and fill them out. Then they can save them and email them or print them and snail mail them to us. Email submissions should be made to alagille@alagille.org with "AKH Scholarship" in the subject line. Snail mail submissions should be mailed to the following address:

    The ALGSA - AKH Scholarship
    10500 SW Starr Drive
    Tualatin, OR 97062

    The application deadline is March 31, 2017 (11:59 pm in the recipient’s time zone when submitted by email; or postmarked by for mailed applications). Award notification will occur after May 1, 2017


  • Links4Life - October-December Issue Available

    Links4Life - October-December Issue Available

    The latest Links4Life is ready for you. Download it now Latest Links4Life Download Link.  Highlights of this issue include info about our #StackingtheOddsforALGS campaign, a call for more board members (please contact us if you want to join our board!), a new edition of Roberta's Ramblings (always a treat), and a profile of our newest board member - Dean Spitzer.  If you want to receive a paper copy, please use the contact form on this website to send us a note.  Make sure you include  your mailing address.  Thank you!

  • ALGS Warrior T-shirts Available

    ALGS Warrior T-shirts Available

    To celebrate we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!

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