• Our Mission

    Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.

Latest News

  • Stacking the Odds Campaign - Challenge and Contribute

    Stacking the Odds Campaign - Challenge and Contribute

  • Links4Life - October-December Issue Available

    Links4Life - October-December Issue Available

    The latest Links4Life is ready for you. Download it now Latest Links4Life Download Link.  Highlights of this issue include info about our #StackingtheOddsforALGS campaign, a call for more board members (please contact us if you want to join our board!), a new edition of Roberta's Ramblings (always a treat), and a profile of our newest board member - Dean Spitzer.  If you want to receive a paper copy, please use the contact form on this website to send us a note.  Make sure you include  your mailing address.  Thank you!

  • ALGS Warrior T-shirts Available

    ALGS Warrior T-shirts Available

    To celebrate we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!

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