Research

The Global ALagille Alliance (GALA) Study is a global initiative to create an international database of clinical, genetic, and laboratory data in children and young adults with Alagille Syndrome (ALGS). The GALA study is led by Principal investigator, Dr. Binita M Kamath. a paediatric hepatologist and senior associate scientist at The Hospital for Sick Children (SickKids) at the University of Toronto, Ontario, Canada, in partnership with the Alagille Syndrome Alliance (ALGSA). The GALA Study is composed of more than 100 physicians, surgeons, scientists, and research coordinators from more than 30 countries around the world. The GALA database differs from a traditional patient registry in that only approved, and verified sites may submit patient data. The GALA Study does not accept medical records from patients directly. If you are interested in contributing your child’s or your own medical records please refer your physician to The GALA Data Coordinating Centre (DCC) Team. Follow the links to the right to go to the GALA website or download the one-page informational sheet you can take to your physician.