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Volunteers are the heart of our mission and we could not exist without their heart-felt personal investment in this organization and community. They play a vital role in supporting our organization, starting with our volunteer Board of Directors which consists of patients, caregivers, and supporters. Volunteers aid in the success of our programs, events, and research initiatives, globally, that serve and empower patients and families affected by Alagille Syndrome.

Volunteer Opportunities

Event Volunteers

Help with set up, registration, merch booth, and other needs at ALGSA events including symposia and regional meetings.

Outreach Volunteers

Raise awareness about Alagille Syndrome programs, services, and resources by representing the ALGSA at conferences and events.

Skill-based Volunteers

Support with your skills! Examples photography, graphic design, speaker at an event, or helping us create a professional resource for the community.

Event Volunteers

Organize your own fundraising event like a 5K, bake sale, or company fundraising event which supports family programming.

Share your ideas

We always want to hear our community members’ ideas! If you have an idea to share, contact us at so we can see if we are already working on something similar or whether it fits our goals and mission to implement.