In September 2022, the Alagille Syndrome Alliance (ALGSA) established the ALGSAcademic Scholarship. The ALGSAcademic Scholarship funds the education of high school graduates or GED credentialed recipients with ALGS, their siblings, their children, and their parents/guardians who are entering or enrolled in an accredited US university, college or vocational school, and choose to pursue higher education. The scholarship award is $1,500 for one semester. Applicants may receive awards up to two times for a total possible award of $3,000, which do not have to run consecutively.
- Be a high school graduate, expect to graduate high school by July 31, 2023, or be a GED credentialed recipient.
- Be diagnosed with Alagille Syndrome or be an immediate family member of an Alagille Syndrome patient – sibling, child, or parent/guardian.
- Be currently enrolled in or planning to enroll in an accredited US college or university as an undergraduate student or in a US vocational or trade school
- Be a citizen of the United States or a legal and permanent resident of the United States.
- See additional program disclosures
Additional Program Disclosures
- The ALGSAcademic Scholarship is a $1,500 scholarship award
- The ALGSAcademic Scholarship program is currently available for US residents only
- An individual may receive up to two (2) ALGSAcademic Scholarship awards under this program
- Multiple awards are not required to run consecutively
- An individual may receive either the ALGSAcademic Scholarship or the Alaina k Hahn Celebratory Scholarship but not both at any time during the life of the programs
- The ALGSAcademic Scholarship program is open to any Alagille Warrior, parent, caregiver, sibling, or child of an Alagille Syndrome patient
- Gradutae programs are not currently included in the ALGSAcademic Scholarship program
- Funding may be used for expenses including but not limited to tuition, books, meal plans, etc.
- Funding for the ALGSAcademic Scholarship award is paid directly to the school
- ALGSA reserves the right to change, discontinue, or cancel this program at any time without notice
Applicants can apply and qualify for up to two $1,500 scholarships. The award may be applied to educational expenses at an accredited US university or college (undergraduate), or US vocational school.
Applications for the ALGSAcademic Scholarship open June 1, 2023, and close July 1, 2023. Application materials available here are for the 2023/2024 academic year’s FALL term. Please see the ALGSAcademic Scholarship packet for more details and how to apply.
ALGSAcademic Scholarship Application Packet
Applications open in early January and close in late April each year with award announcements in mid-May. Application materials will be available here each January for the academic year starting with fall term of each year.
In February 2015, the Alagille Syndrome Alliance (ALGSA) established the Alaina K Hahn Celebratory Scholarship in honor of Alaina K. Hahn, the daughter of Cindy Luxhoj, ALGSA Founder. Alaina was born September 30, 1990, with Alagille Syndrome and was the inspiration for the creation of the Alagille Syndrome Alliance. She passed away September 30, 1990, due to complications with Alagille Syndrome on January 15, 2015, when she was only 24 years old.
The Alaina K Hahn Celebratory Scholarship fund the education of high school graduates or GED credentialed recipients with Alagille Syndrome who are entering or enrolled in an accredited US university, college or vocational school and choose to pursue higher education in the human biological, medical, or health sciences field. The scholarship award is $1,000 for a single year and is renewable for a second year, subject to open competition with other applicants, for a total possible award of $2,000.
Alaina cared deeply about other children and adults who battle Alagille Syndrome. She talked, texted, and emailed her many ALGS friends daily and was constantly sharing advice and experiences with parents and patients through social media. She lived and breathed this disease, but never let it limit or define her.
A graduate in Human Physiology from the University of Oregon, Alaina was pursuing certification in Orthotics and Prosthetics with plans to obtain a Masters in O & P from the University of Washington when she died. This scholarship honors Alaina’s legacy.