Science / Research
The ALGSA is very involved in science and research initiatives including many initiatives developed and led right here at the ALGSA. In 2024, the ALGSA is developing the ALGSA Scientific Research Network, expanding on areas of research interest within the community of patients and stakeholders, as well, we are building on our ALGSA Collaborative Scientific Research Grant program that you will see grow this is year.
Global ALagille Alliance (GALA)
Sanford CoRDS ALGS Patient Registry
Invitae PIN ALGS Patient Registry
ALGSA Collaborative Scientific Research Grant
In 2019, the ALGSA developed the ALGSA Collaborative Scientific Research Grant, a 2-year, $150,000 award, given $75k annually, to one scientist, researcher, or clinician studying Alagille Syndrome.
What Is Alagille Syndrome?
Alagille syndrome is a rare liver condition that is passed down through families. It occurs due to the liver's inability to properly remove bile, which is digestive fluid that contains acids,...
Scientific Meeting on Alagille Syndrome and Research Round Table Event
The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in...