Science / Research
The ALGSA is very involved in science and research initiatives including many initiatives developed and led right here at the ALGSA. In 2024, the ALGSA is developing the ALGSA Scientific Research Network, expanding on areas of research interest within the community of patients and stakeholders, as well, we are building on our ALGSA Collaborative Scientific Research Grant program that you will see grow this is year.
Global ALagille Alliance (GALA)
Sanford CoRDS ALGS Patient Registry
Invitae PIN ALGS Patient Registry
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Team Small but Mighty – Importance of Patient and Family Involvement in Fundraising Initiatives Q & A
Learn why ALGS Mom, Erin Hasselberg Lucca, participates in the Fight for a Better Life campaign each year and how she views working in partnership as a parent to advocate and raise awareness for...
Scientific Meeting on Alagille Syndrome and Research Round Table Event
The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in...