Science / Research

The ALGSA is very involved in science and research initiatives including many initiatives developed and led right here at the ALGSA. In 2024, the ALGSA is developing the ALGSA Scientific Research Network, expanding on areas of research interest within the community of patients and stakeholders, as well, we are building on our ALGSA Collaborative Scientific Research Grant program that you will see grow this is year.

Global ALagille Alliance (GALA)

Sanford CoRDS ALGS Patient Registry

Invitae PIN ALGS Patient Registry