Science / Industry
The ALGSA partners to create and shares amazing resources for healthcare professionals made to accelerate understanding of this complex syndrome and associated health problems. Equally important, healthcare professionals need quick access to resources developed to help patients and families in need.
Global ALagille Alliance (GALA)
Sanford CoRDS ALGS Patient Registry
Invitae PIN ALGS Patient Registry
Partnerships in Industry
In 2019, the ALGSA developed the ALGSA Collaborative Scientific Research Grant, a 2-year, $150,000 award, given $75k annually, to one scientist, researcher, or clinician studying Alagille Syndrome.
Alagille syndrome is a rare liver condition that is passed down through families. It occurs due to the liver's inability to properly remove bile, which is digestive fluid that contains acids,...
The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in...