International Symposium and Scientific Meeting on Alagille Syndrome

Each year, the ALGSA hosts the International Symposium on Alagille Syndrome, rotating the event annually between virtual and in-person. Every other year when the event is in-person, the ALGSA includes a very prestigious scientific meeting and roundtable event as well, pulling in leading scientific experts on Alagille Syndrome and up and coming stars in the field. The roundtable event melds together attendees from both the symposium and the scientific meeting including scientists and researchers, pharma and industry executives, medical doctors and health care workers, rare disease media outlets, and families in a collaborative innovative series of discussions and brainstorming. The symposium, whether in-person or virtual, is a flagship event at the ALGSA where families and all stakeholders can hear directly from patients and caregivers about their experiences and learn all the latest and greatest updates in science and the clinical setting. A convergence of great minds. You will leave feeling educated about the ALGSA, the latest science, and current and future treatments for ALGS patients. Furthermore, patients and families make new life-long friendships with those who “just get it”.

382 Days

Symposium for 2025 will be a large multi-disease state event. More to come!








Symposium for 2024 is cancelled and will be replaced with 4 regional meetings across the US. Event details to be shared in early 2024.