Patient and Family Programs and Resources

We have 15+ programs aimed at helping patients and families living and dealing with Alagille Syndrome. These programs include, but are not limited to, advocacy and awareness, disease education, events and family conferencing, opportunities to enroll in science and research initiatives, patient and family mentorship, financial assistance, natural disaster help, Christmas gift adoption program, and more! Download the free family program guide, link to the right, and connect with us to learn more!

ALGSA Family Programs

  • ALGSAssistance – financial assistance for patients and families experiencing financial hardship
  • Continuity of Care – financial assistance for patients and families who have experienced a natural disaster
  • ALGSAcademy – educational resources and materials to help you better understand ALGS
  • ALGSAbroad – international support for families living outside the United States
  • Holiday Giving Tree Family Gift Adoption Program – support for families in financial hardship during Christmastime that ensures every enrolled family can celebrate the holidays
  • ALGSAcademic Scholarships – higher education assistance program for patients and their immediate family members
  • ALGSA Jr. – a program to support kid and teen patients or siblings experiencing ALGS in their family
  • ALGSAwareness – Alagille Syndrome awareness initiatives to help you better explain to family, friends, and co-workers about ALGS and what you are going through
  • ALGSAssurance – mental health support, financial assistance for bereaved families, honoring ALGS fallen warriors, and more
  • ALGSAccess – helping families access important resources, medications, clinical trials and research opportunities, travel scholarships, scholarships, and help with event travel and attendance scholarships
  • HealthWell Foundation Vitamins and Supplements Fund – financial assistance to obtain vitamins and supplements for the management of ALGS