Nelson's Story

Rare Disease Care

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ALGSA Symposium 2024

Come join other ALGS families at a fun and informative event. We have topics to fit every ALGS family from ALGS 101 to deep dives into the genetics of ALGS and current research on the disease.

Virtual Events in October

Virtual Events in October

Read all about the virtual events we have planned for October. There are many opportunities for ALGS families to connect and learn together.