Nelson's Story

Content

Symposium is a great gathering for families and medical professionals. There is a lo of good information exchanged and shared.

Important Links

Visit the GALA Study website, here: https://www.galastudy.com/

Connect with the GALA Data Coordinating Centre (DCC) Team, here: https://www.galastudy.com/participating-centres

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Rare Disease Care

Rare Disease Care

One of the key challenges in rare disease care is the limited understanding of these conditions. Many rare diseases are genetic or congenital, and research into their causes and potential treatments is often underfunded. Patients and their families frequently face diagnostic odysseys, enduring years of uncertainty before receiving a proper diagnosis.