by Jordan Jankoviak | Feb 7, 2018 | Alliance News
CHILDREN WITH ALAGILLE SYNDROME HAVE MALFORMED BILE DUCTS Serious liver and heart problems can affect children with Alagille Syndrome early in life. While there is as yet no cure, researchers at Karolinska Institutet have discovered that the liver disease part of the...
by Jordan Jankoviak | Feb 1, 2018 | Alliance News
ITCH STUDY SHOWS REDUCTION IN PRURITUS IN ALAGILLE SYNDROME [/fusion_text][fusion_text] WASHINGTON — In a dose-varied study of maralixibat, patients’ caregivers reported trends toward pruritis relief while the drug also demonstrated safety, according to a presenter at...
by Jordan Jankoviak | Feb 1, 2018 | Alliance News
IDENTIFICATION OF KEY MUTATION IN ALAGILLE SYNDROME OFFERS HOPE OF NEW TREATMENT [/fusion_text][fusion_text] A RARE but potentially life-threatening genetic disorder, known as Alagille syndrome, is associated with chronic liver and heart problems in children. Little...
by Jordan Jankoviak | Feb 1, 2018 | Alliance News
NEW CLUES TO TREAT ALAGILLE SYNDROME A new study led by researchers at Sanford Burnham Prebys Medical Discovery Institute (SBP) identifies potential new therapeutic avenues for patients with Alagille syndrome. The discovery, published in Nature Communications,...
by Jordan Jankoviak | Jan 25, 2018 | Alliance News
FOR IMMEDIATE RELEASE Contact Cindy Luxhoj, Executive Director and Founder Alagille Syndrome Alliance alagille@alagille.org or cluxhoj@alagille.org (503) 970-1255 Wilsonville, Oregon WILSONVILLE , OR, January 25, 2018 – The...
by Jordan Jankoviak | Jan 8, 2018 | Alliance News
ALGSA e-news! ALAGILLE SYNDROME ALLIANCEStay strong. Press on. Volume 1, Issue 3January 2018Alagille Syndrome Alliance e-NewsletterANNOUNCING.... The Alaina Kaitlyn Hahn Celebratory Scholarshipis NOW open for applications for the Alaina Kaitlyn Hahn Celebratory...