ALGSAware The Alagille Syndrome Alliance awareness ribbon for ALGS reflects the significantly complex and uniquely varying severity of the disease throughout our ALGS community. This ribbon recognizes those affected by just a few organ systems and those affected by...
ALGSA Gala of Dreams – The Dawn of a Dream On June 30, 2018, the ALGSA celebrated many of the Champions who work tirelessly to bring our Dreams to a reality. The first annual Gala of Dreams presented by Albireo Pharma and Shire Plc, held at the San Diego...
FOR IMMEDIATE RELEASE Contact: Cher Bork Phone: 901-355-4613 Email: cher@alagille.org Shire Plc Named as Presenting Sponsor of Alagille Syndrome Alliance (ALGSA) Gala of Dreams Inaugural Event WILSONVILLE, OR, May 24, 2018 — Shire Plc has been named as presenting...
ALGSA e-News - May 2018 ALGSA e-News ALAGILLE SYNDROME ALLIANCE Stay strong. Press on. Volume 2, Issue 4 May 2018 Alagille Syndrome Alliance e-Newsletter * You're Invited * Gala of Dreams The Dawn of a Dream To celebrate raising $12K+ through the RARE Carousel of...
Alagille Syndrome Alliance first annual gala held FOR IMMEDIATE RELEASE Contact: Cher Bork Phone: 901-355-4613 Email: cher@alagille.org International Rare Disease Nonprofit, Alagille Syndrome Alliance (ALGSA) To Host First Annual Gala and Silent Auction to Recognize...