Meet Amari My 6-year-old son Amari was diagnosed with Alagille Syndrome at 5 months old. This was after I pressured his pediatrician to send him for emergency bloodwork. His was not one of the most severe cases. Amari’s biggest concern was his liver function. His skin...
Meet The Gladstone Family! We are the Gladstone Family from Albury, NSW, Australia. I’m Tenille, and my husband is Ben. Our family includes our eldest daughter Peighton, who has Alagille Syndrome (ALGS), and her younger sister Harper. Peighton’s...
Meet Christina! My name is Christina, I’m from London. I was diagnosed with ALGS when I was six after my ophthalmologist noticed both myself and my dad had abnormal eye structure. It turned out I’d inherited the condition from him, but neither of his parents had it....
The Global ALagille Alliance (GALA) Study is a global initiative to create an international database of clinical, genetic, and laboratory data in children and young adults with Alagille Syndrome (ALGS). The GALA study is led by Principal investigator, Dr. Binita M...
The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in Alagille Syndrome.
