by Jordan Jankoviak | Oct 2, 2024 | Family Stories
Meet Amari My 6-year-old son Amari was diagnosed with Alagille Syndrome at 5 months old. This was after I pressured his pediatrician to send him for emergency bloodwork. His was not one of the most severe cases. Amari’s biggest concern was his liver function. His skin...
by Jordan Jankoviak | Jun 27, 2024 | Family Stories
Meet The Gladstone Family! We are the Gladstone Family from Albury, NSW, Australia. I’m Tenille, and my husband is Ben. Our family includes our eldest daughter Peighton, who has Alagille Syndrome (ALGS), and her younger sister Harper. Peighton’s...
by Jordan Jankoviak | Apr 11, 2024 | Family Stories
Meet Christina! My name is Christina, I’m from London. I was diagnosed with ALGS when I was six after my ophthalmologist noticed both myself and my dad had abnormal eye structure. It turned out I’d inherited the condition from him, but neither of his parents had it....
by Jordan Jankoviak | Jan 14, 2024 | Research
The Global ALagille Alliance (GALA) Study is a global initiative to create an international database of clinical, genetic, and laboratory data in children and young adults with Alagille Syndrome (ALGS). The GALA study is led by Principal investigator, Dr. Binita M...
by Jordan Jankoviak | Jan 14, 2024 | CRADA
The International Symposium on Alagille Syndrome event is in-person every other year and virtual in the off years. While in-person, we take the opportunity to bring together brilliant minds in Alagille Syndrome.
