Meet Christina! My name is Christina, I’m from London. I was diagnosed with ALGS when I was six after my ophthalmologist noticed both myself and my dad had abnormal eye structure. It turned out I’d inherited the condition from him, but neither of his parents had it....
Meet Camden! Hello, we are the Johnson family. My name is Shanda, my husband is Colt, our 6-year-old ALGS warrior is Camden, and we have a 3-year-old son Crew. We live in Atlanta, GA and Camden is treated at CHOA and CHOP. Camden was diagnosed with ALGS at 5 weeks old...
Meet Sammy! I am Heidi and my husband is Tim. We have two boys, Joseph is 3 and Sammy is 2. We live in Northern Utah. Sammy has Alagille Syndrome. We haven’t had genetic testing done, so we don’t know if Joseph does or if it came from either of us....
Meet Dylan and Emmanuel! Hola familia alianza latín nosotros somos la familia baraja lizarazo de la ciudad de Cúcuta Colombia mi nombre es yasmin mi esposo Edgar mi hija Gabriela que es una niña sana mi hijo Dylan Gabriel que tiene síndrome y Emmanuel Barajas que...
Meet Zairita! Que linda la frase “hijos especiales, para padres especiales” , eso genera una conciencia familiar y social; que si tuviste la dicha de tener un niño especial con Alagille, te despierta un amor sincero y apegado a la realidad, esa realidad que aunque...
Meet Tomas! El se llama tomas de 3 años..alos 10 dias de nacido se puso amarillo y fue trasladado a mar de plata la costa para estudios del por que no se iva lo amarillo tras 1 mes de internacion y estudios le destectaron sindrome de alagille !!°algo nuevo para mi y...
