Meet Reece! I am Paige, wife to Chris, and mom to 3 kids, 6-year-old twins and a 2-year-old, Reece, with ALGS, who will be 3 yrs old in April. We live in Charleston, South Carolina. What a challenging & wild Alagille journey this has been, It started during...
Meet Sara and Isabella! Buenos días cordial saludo mi nombre es Sulien Ortega hoyos de popayán cauca. Colombia madre de 2 nenas sará salomé sanchez Ortega y isabela sanchez Ortega las cuales nacicieron en Bogotá Colombia prematuras 7 meses las cuales tuvieron...
Meet Reed! My name is Katie Harrell. My husband’s name is Garrett and our son is Reed. We live outside of Greenville, North Carolina. Our son Reed was diagnosed with Alagille Syndrome when he was almost 2 months old. My pregnancy was normal. My husband and I were...
Meet Emiliano! Hola mi nombre es Angelica gerena y el de mi esposo Jhon mario mejia de nacionalidad colombianos específicamente de la ciudad de Armenia, Quindío . somos los padres de Emiliano mejía rengifo un hermoso valiente que llegó a nuestras vidas a enseñarnos la...
Meet Tanner! Our Alagille Warrior, Tanner, age 7, is the youngest of our 3 boys. Our family of 5 lives in Olathe, KS and our team of doctors is at Children’s Mercy, Kansas City. Tanner was diagnosed pretty quickly at 6 weeks of age when we noticed he was jaundice. ...
Meet Roxy! Hi, My name is Roxy, I have Alagille Syndrome, and live in Henderson, Nevada. Together with my mother, Firouzeh, and my father, Ramin, we are the Pakravan family. I also live with my trusted furry K9s, Hunter and Oliver. I was 2 months old in July 1996...
