The ALGSA’s FIGHT For A Better Life event is the Alagille Syndrome Alliance’s largest annual fundraising campaign, and this year more than ever we are UNITED in the FIGHT! The FIGHT is a virtual, individual or team-based event held May 1st to June 15th of each year. During this time, ALGSA stakeholders including ALGS families and friends, create teams or individual customized fundraiser pages online through our platform with financial goals in mind. This is done in support of reaching individual and team fundraising goals and the ALGSA’s overall fundraising goal. Each team or individual will plan and execute their own in-person or online fundraiser. Example fundraisers include pop can drives, shoe drives, restaurant fundraisers, auctions, yard sales, 5k races, fun runs, and online fundraisers – all at a comfortable level of involvement for the individual or team.
This campaign funds ALGS programs and the development of opportunities for ALGS families around the world. Programs include the financial assistance program, educational resources, disease awareness, travel scholarships and event participation. Opportunities include connecting families to scientific and research projects, outlets to share their rare disease story, initiatives where they can inject their patient voice, and events they can participate in or even lead. Get started now! Create a team or individual fundraiser today. UNITE together with ALGS families, friends, and Alliance supporters from around the world to help reach our FIGHT goal!
Make a big difference in the lives of those living and dealing with Alagille Syndrome.
Help We Need for This Event:
Individuals or Teams join the FIGHT! Plan your event, set up your donation page, UNITE for the FIGHT! Need help? Email alagille@alagille.org.
Individual or family testimonies about how ALGSA programming or opportunities helped you personally. Send to alagille@alagille.org.
Individual or team “Why” via written or video testimony. Send to alagille@alagille.org.
Past individual or team fundraising success stories for new team fundraising inspiration. Send to alagille@alagille.org.
Spreading the word! Share, comment, and like FIGHT posts and content.
We are UNITED in the FIGHT! Won’t you join us?
FIRED UP for ALGS
FIRED UP for ALGS will do a combination of two fundraisers from May 1 to June 15, one an online fundraiser, and two a sale of custom Cloe-Art blank cards. Cloe has created several unique and beautiful abstract designs perfect for colorful, fun cards to be used as thank you cards, personal notes, and more!
Donate to team FIRED UP for ALGS
Ella’s Treats for a Cause
This year, the treats are a little different! I am
selling collectible vinyl copies of my debut
album, “Seeing Things!” Thank you for listening
and for supporting the ALGSA!!
Donate to Ella’s Treats for a Cause
Team Mighty Micco
We fight to raise awareness for the Alagille Syndrome community and to help advance the efforts in areas of research, science and the quality of life for alagille patients and families through our fundraising efforts.
Donate to Team Mighty Micco
Kelley Family Fundraisers
We hope to raise awareness about Alagille Syndrome and support the mission of the Alagille Syndrome Alliance.
Donate to Kelley Family Fundraisers
Luke's Warrior Run & 5k
Join us at Luke’s Warrior Run & 5k as we raise awareness and funds for the Alagille Syndrome Alliance. The ALGSA is the only organization advocating for those fighting Alagille Syndrome.
Donate to Luke’s Warrior Run & 5k
Bryce's Buddies
Our mission is to raise donations for the Alagille Syndrome Alliance. The Alliance provides important resources and supports to patients with Alagille Syndrome and their families.
Donate to Bryce’s Buddies
Team Shamy: Penning Hope and Connection!
I believe the written word can create connections and enhance empathy for people around the world. For example, I found the ALGSA through a post on Facebook, where my responding to a parent’s question set off a lifetime of purpose, community, hope, joy, and connection. Learn more on my page!
Donate to Team Shamy
Small but Mighty
Last year we raised $12,000 for the Alagille Alliance after welcoming our own Alagille warrior, Kate, into the world. This year we are aiming are sights at a more modest goal of $6,000 (but wouldn’t it be amazing if we exceeded our goal?!?) to support the ONLY patient advocacy organization in the world supporting the Alagille community.
Donate to Small but Mighty
Drew's Crew
Our mission is to raise donations and awareness for the Alagille Syndrome Alliance.
Donate to Drew’s Crew