ALGSA Jr. is a program dedicated to ALGS warriors and siblings under the age of 18 through events, age appropriate resources and connections. This space is specifically designed for kids to be kids! Please email us anytime to discuss ideas and current needs for kids at Stephanie@alagille.org.
Explore different aspects of the program:
- ALGSA Jr. Book Nook
- Teen Council
- Resource Documents for Kids
- ALGSA Jr. Events
- ALGSA Jr. Merch
Coming Soon! ALGSA Jr. Magazine featuring articles, patient spotlights and fun activities! Sign up for your copy today by sending your request to Stephanie@alagille.org.
ALGSA Jr. Programs
Developmentally appropriate resources are available to support the understanding of ALGS for even some of the youngest patients!
Reading books about rare disease or medical procedures can help children understand their bodies and what takes place during hospital visits. The Recommended Reading List and Story Time video database are a great place to start to find your child's next favorite book!
Recommended Reading List
Zara Shares Her Stripes
HOWL the OWL Series
There is no one better equipped to talk about the needs of teens within the ALGS community than TEENS! We want each of you to be educated and empowered to advocate for your needs.
Our next zoom meeting will be Wednesday, March 13th at 5:30 pm
Contact Form link (must include parents email address for consent)
ALGSA Jr. Events
ALGSA Jr. Merch
The ALGSA has inventory in stock of these ALGSA Jr. tees and awareness wristbands in junior and adult sizes. To order, email Stephanie@alagille.org.
The ALGSA's new merch store also has junior sized apparel! Click YOUTH in the menu of the store to see all items available for kids!