International Symposium


Symposium, Scientific Meeting and Research Roundtable

The 8th International Symposium and Scientific Meeting on Alagille Syndrome is the largest gathering of ALGS families, researchers and industry professionals in the world.

We thank our families and all of our ALGS stakeholders for attending this important event! Take a look below to see how we worked to Connect the Pieces!

Quick Links:

  • Scientific Meeting Overview
  • Research Roundtable Survey Results
  • Research Roundtable Recordings
    • Welcome and Goals for the Research Roundtable (Video)
    • Family Presentations, Family Survey Results (Video)
    • Scientific Meeting Overview, Investigator Perspectives, Working Group Questions #1 (Video)
    • Working Group Questions #2  (Video)
    • Working Group Summaries and Findings (Video)
  • Research Roundtable White Paper  (coming soon)
  • Symposium Presentations
    • Where We Were, Where We Are, Where We’re Going, David A. Piccoli, MD (Video)
      • Slides
    • ALGS Expert Panel (Video)
    • ALGS Genetically Speaking, Nancy B. Spinner, Ph.D. (Video)
      • Slides
    • GALA Program, Binita Kamath, MD (Video)
    • Clinical Trials – Drug Development, Pam Vig, Ph.D. (Video)
      • Slides
    • Caring for the Caregiver (Video)
    • Teen and Young Adult Panel (Video)
    • School Age Concerns, Chanda Turner & Ryan Woodside (Video)
      • Slides
    • IEPs and 405s – How, What and Why (Video)
    • Clues from Mouse Kidney Studies, Kamesh Surendren, Ph.D. (Video)
    • Building a Support System (Video)
    • CoRDS Registry, Alyssa Mendel (Video)
      • Slides
    • Why Supporting Advocacy is Important, Kendall Davis (Video)
    • Nutrition and Cholestatic Liver Disease, Kathleen Loomes, MD (Video)
    • Celebration Dinner and Presentation of 2019 Champion Awards (Video)
    • Keynote Speaker – Bruce Friedman, Team Telomere (Video)
      • Slides
  • Scientific Meeting and Symposium Photo Album – Album LINK

Questions? Please contact alagille@alagille.org

CHANGING LIVES TODAY

“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”