Alagille Syndrome GALA

Launched in October 2017, the Global ALagille Alliance (GALA) Study is advancing research and changing lives. By pooling together medical records from around the world to create a vast one-stop database of patient information, this three-year effort will be the bedrock of future research projects that will unravel the mysteries of Alagille Syndrome (ALGS). The cornerstone of this effort is a comprehensive medical record review of patients with ALGS up to 30 years of age from 1997 to present. GALA’s overarching aim is to conduct a comprehensive analysis of an international group of individuals with ALGS which will increase understanding of the disease and identify the challenges and needs of this unique population.

The Hospital for Sick Children and University of Toronto are leading this multi-center study with a grant from the ALGSA. Those interested in participating in GALA as an institution/site should email for more information.

Dr. Binita Kamath, Principal Investigator, GALA


“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”