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ALGS Warrior T-shirts Available


To celebrate Rare Disease day, we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!


2016 Symposium Registration Link Now Active


You can now make your hotel reservations for the 2016 Alagille Syndrome Symposium in San Diego, California. Follow the link to go to the 2016 Symposium page for more information. We look forward to seeing you at the Symposium next year!


Support the Alliance while shopping on Amazon with Amazon Smile


You can support the Alliance while you shop on Amazon! How do you do it? Simply go to http://smile.amazon.com when you want to shop on Amazon. Then on the top of the page underneath the product search box, choose Alagille Syndrome Alliance from the drop down next to "supporting". That's it! Now everything you purchase will count towards a donation from Amazon.com to the Alliance. Thank you!


New Paper Sheds Light on Misdiagnosis of ALGS in Infants


A recent paper by researchers Dědič T, Jirsa M, Keil R, Rygl M, Šnajdauf J and Kotalová R of the Czech Republic may explain why ALGS patients are misdiagnosed or not diagnosed at all when they are infants. This causes many problems including improper treatment and care. You can read the entire paper by clicking HERE.


Emily Long Describes ALGS



Latest Links4Life - July - December 2015 - Available for Download


The latest issue of Links4Life is now available for download in PDF format.  The issue is highlighted by more information on the causes of itching in ALGS patients, a research update, an introduction of our newest (and youngest!) board member and lots of other great info .  Check it out now!


 

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 Do you shop on Amazon.com?  If you do, why not let Amazon donate a portion of the total sale to the Alagille Syndrome Alliance?  The money will be used to benefit ALGSA families.  

View our donation page for more information on what the donated money is used for. 

 

To use Amazon Smile, browse to http://smile.amazon.com. Sign in to your account and select Alagille Syndrome Alliance as the charity of your choice.  Thank you!

 

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The information presented on this web site is provided for information purposes only. This information does not constitute medical advice and it should not be relied upon as such. The Alagille Syndrome Alliance does not engage in the practice of medicine. Under no circumstances, does the Alagille SyndromeAlliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuingany course of treatment. 

The information presented on this website is provided for information purposes only.  This information does not constitute medical advice and it should not be relied upon as such.  The Alagille Syndrome Alliance does not engage in the practice of medicine.  Under no circumstances does the Alagille Syndrome Alliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuing any course of treatment.

 

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