Official Website of the Alagille Syndrome Alliance

AGS Spotlight: Star of "Team Sohpie Alina"

Sophie Alina McGuinness - enjoying a beautiful summer day on Grampa Fernald's boat in Lakeville, MA. Sophie was diagnosed shortly after birth with AGS. She celebrated her 3rd birthday on May 13, 2009, with a dinosaur theme. She lives in Midway, MA, with mom Andrea, dad Matthew and baby brother Gavin. Despite all the medication she takes daily and all the doctor's visits with bloodwork and tests, Sophie has a great personality, wonderful imagination, and is sweet, lovable and caring. She loves to be read to, to sing and dance, and to run. Her favorite color is green, and she loves frogs, dinosaurs, and Thomas the train. Other than having AGS, she is a typical little girl who brings smiles to everyone she meets.

        A very generous donor - Southern Union Company - has offered to match all donations the Alliance receives as a result of our Annual Fundraising Campaign on a dollar-for-dollar basis, up to $10,000.

      This means that for every dollar collected in the little red bag everyone received in the latest issue of our Links4Life newsletter and donated to the Alliance, we'll receive the same amount from Southern Union Company, effectively doubling the donations. All a donor has to do is send their donation to us. It's that easy!

      We hope that everyone will take advantage of this opportunity to double their dollar, while helping to support our work of funding AGS research and education, and helping everyone with AGS build a better life.

If you would like more little red bags to give to family and friends so they, too, may have a "Guest" at their table; or if you do not receive our newsletter and, therefore, do not have a little red bag but would like one, please email alagille@alagille.org. We'll send some your way!

Thank you for
Donating Today and
Raising Hope for Tomorrow!

A Special Announcement about our Annual Fund Raising Campaign

Get your copy of the latest Links4Life now!

Click here to go the Links4Life page

The July-December 2009 issue of Links4Life is now available for download. If you would like to download the current issue, please follow the link below to our Links4Life page. Enjoy!

YouTube videos wanted!

The Alliance has a YouTube channel, but we don't have any content for it at this point. Do you have anything news worthy or fun for the Alliance's YouTube channel? If you do, please email the Alliance webmaster. Thank you!

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The information presented on this web site is provided for information purposes only. This information does not constitute medical advice and it should not be relied upon as such. The Alagille Syndrome Alliance does not engage in the practice of medicine. Under no circumstances, does the Alagille SyndromeAlliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuingany course of treatment.