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Symposium 2014 Surveys Available


If you attended the 2014 Symposium but forgot to fill out a survey, please download a survey now, fill it out and email it back to alagille(at)alagille.org. We want to know what you thought about the speakers, location, childcare, food and anything else that is on your mind. Thank you!

 

 

 


Symposium 2014 Video Available to View


In case you missed it, we have all the Symposium videos available to view on our YouTube channel. You can catch sessions you missed or watch the whole thing if you want to. Check them out here: ALGSA YouTube Channel

 

 

 

 

 


ALGS'er in Ireland Shares Her Story


 

 

 

Katie, an ALGS'er in Northern Ireland, shares her heartwarming story with the world. Watch it now on YouTube.

 

 

 

 


There’s power in numbers. Help us build our patient registry!


The ALGSA announces our own disease registry! We invite all ALGSers to join, to provide de-identified medical information to the registry to help everyone in the global ALGS community – patients, families, researchers, clinicians, and pharmaceutical companies – learn more about ALGS. The goal is improved diagnosis and medical care, as well as empowerment of patients and families through knowledge, connections, and support. If you have any questions about the ALGSA CONNECT registry, or to opt in, please contact us at alagille(at)alagille.org.

Join the ALGSA CONNECT registry

 

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The information presented on this web site is provided for information purposes only. This information does not constitute medical advice and it should not be relied upon as such. The Alagille Syndrome Alliance does not engage in the practice of medicine. Under no circumstances, does the Alagille SyndromeAlliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuingany course of treatment. 

The information presented on this website is provided for information purposes only.  This information does not constitute medical advice and it should not be relied upon as such.  The Alagille Syndrome Alliance does not engage in the practice of medicine.  Under no circumstances does the Alagille Syndrome Alliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuing any course of treatment.

 

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