Resource Library

Patient and Caregiver Manuals and Guides

One-Page Educational Resources

Translated Resources

ALGSA Patient and Family Program Guide

New Diagnosis Guide

ALGS Care Manual

Succeeding in the Classroom Guide

ALGSA Navigating IEPs and 504s Quick Reference

What is Alagille Syndrome

The Genetics of ALGS

Genetics of ALGS: FAQ

Alagille Syndrome - More Than a Liver Disease

Hepatocellular carcinoma (HCC) in Alagille Syndrome

Hepatocellular carcinoma (HCC) in Alagille Syndrome

We have many translated resources and we will continue to add to the website. If you have something you’re interested in please email us.