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International Alagille Syndrome Awareness Day

International Alagille Syndrome Awareness Day is a day to bring Alagille Syndrome to the forefront, celebrate ALGS families and increase knowledge with physicians, scientists, family and friends! Together we can use our voices to help everyone become.#ALGSAware!

For every ribbon, the ALGSA provides a promise of progress. Join us this International Alagille
Syndrome Awareness Day in bringing hope to the ALGS community.

Download the International Alagille Awareness Day toolkit for access to resources you can use to get involved, bring hope to the ALGS community and Be #ALGSAware!

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Get Involved: Share Your Story

Sharing your family story can help you feel less alone, connect you with other ALGS families, and inspire patients and caregivers going through the same journey.

Get started today by emailing roberta@alagille.org

Get Started

Meet the Gladstone Family

We are the Gladstone Family from Albury, NSW, Australia. I m Tenille, and my husband is Ben. Our family includes our eldest daughter Peighton, who has Alagille Syndrome (ALGS), and her younger sister Harper.

We are the Gladstone Family from Albury, NSW, Australia. I m Tenille, and my husband is Ben. Our family includes our eldest daughter Peighton, who has Alagille Syndrome (ALGS), and her younger sister Harper.

Get Involved: Be #ALGSAware

Where in the world are you #ALGSAware ?

Send us your photo with your #ALGSAware sign and we will share on social media. Send directly to alagille@alagille.org or share on your page and tag @ALGSAlliance

What you can share using #ALGSAware?

  • Photos of yourself, your child, or your family – post your photos on social media using the #ALGSAware hashtag, and tag the ALGSA (@ALGSAlliance) so we can share.
  • Personal stories – share your experiences with ALGS, including the physical and emotional impact.
  • Awareness Day tributes – share videos to raise awareness on International Alagille Syndrome Awareness Day.

Where can you find #ALGSAware content?

Facebook, Instagram, LinkedIn, and other social media pages. Follow and tag the Alagille Syndrome Alliance @ALGSAlliance on all social media platforms

Get Involved: Understanding the ALGSAwareness Ribbon

YELLOW – for the liver and digestive system
RED – for the heart and circulatory system
GREEN – for the kidneys and renal system
BLUE – for the lungs and pulmonary system
PURPLE – for the brain and vascular system
CREAM/PEARL – for the skeletal system
The Alagille Syndrome Alliance awareness ribbon for ALGS was created in 2018 and reflects the significantly complex and uniquely varying severity of the disease throughout our ALGS community. This ribbon acknowledges the diverse spectrum of ALGS cases, encompassing patients with both limited and widespread organ involvement. It is our hope that we can unite, relate and empower everyone dealing with ALGS, either mild or severe, and bring together those with significant organ representation who may not focus on ALGS as a whole but rather the organ system most affected.

We want our ALGS heart families, liver families, kidney families, and vascular families struggling through their diagnoses to know we are here fighting for them. We want to impress on our community that Alagille Syndrome cannot be treated as one single condition. Together, we can fight to find the cure through researching each organ system and supporting families who relate more to one significantly affected symptom. Our Alagille Syndrome awareness ribbon is meant to encourage our ALGS families, scientists, researchers, and donors and show the world that we cannot be separated by symptoms but rather united by uniqueness.

This multi colored ribbon represents all of the major body systems affected by Alagille Syndrome. Each color may stand alone backed by the ALGSA. When combined, the ribbons form a strong and beautiful representation of all of our Alagille Syndrome Warriors!

Support Alagille Syndrome Awareness today!

Your heartfelt gift helps us provide FREE resources, support, and hope for thousands of patients, loved ones and healthcare heroes.

  • Provide families with a place to turn for education, financial assistance, guidance and answers.
  • Support groundbreaking science and research including ALGSA led initiatives.
  • Help more Alagille patients and their loved ones learn about the variability, severity, and risks of ALGS.
  • Expand access to specialists, medications, and opportunities for the greater ALGS community.

The mission of the ALGSA would not be possible without the support of donors like you. Thank you for your support!