The Caregiver Support Group is a recurring monthly support group that meets virtually, rotating days and times each month to be more accessible for national and international caregivers. The participants are caregivers of patients affected by ALGS. This support group is facilitated by Dr. Al Freedman, rare disease dad and psychologist in partnership with the ALGSA.
June 18th, 1pm EDT – the ALGSA offers recurring virtual monthly support groups for bereaved individuals and family members who have lost a loved one with ALGS. These groups are open internationally and are in English. Facilitated by Dr. Al Freedman, the support groups were created to offer a loving, compassionate, and safe space with a licensed psychologist and rare disease dad who understands personally and professionally. Please register for February’s support group at the link provided below in advance. We will update new monthly dates throughout the year. Please check back!
