Unite for the FIGHT – ALGSA’s Fight for a Better Life Campaign

United in the FIGHT - Fight for a Better Life is the ALGSA's largest fundraising event each year where ALGS patients, families, ALGSA staff and board, and friends and supporters come together to support patient and family programming by creating individual and team fundraising pages, setting personal or team fundraising goals, and working to reach those goals by hosting in-person events or virtual sharing to benefit ALGS families.  Join us today by creating an individual or team page and roll your sleeves up in partnership to reach the annual goal of $50,000 for ALGSA patient and family programming! Click the link HERE to donate or create your fundraising page. We are here to help! Want to get started and don't know how? Want help getting your thoughts organized? Want to better understand the event and how you can help! Email us, today, at alagille@alagille.org.

Luke’s Warrior Run + 5k and ALGSA Family Meetup BBQ-Puyallup, WA

Bradley Lake Park 531 31st Ave SE, Puyallup, WA, United States

Join The Bird family June 2nd for the 3rd annual Luke's Warrior Run + 5k! New this year is the ALGSA Family Meetup BBQ, hosted by the Birds, happening alongside Luke's Warrior Run + 5K. All proceeds will benefit the Alagille Syndrome Alliance (ALGSA) as part of the ALGSA's Fight for a Better Life campaign. Families affected by ALGS, friends and family members of the Bird and Chanes families are welcome, along with community members, individuals looking to join a fun informal run for charity, and anyone wanting to learn more about the Alagille Syndrome Alliance. The event will take place at Bradley Lake Park in Puyallup, WA, starting at 10:30 am with the Warrior Run kicking off at 11 am. Come join the fun, have a few laughs, grab a bite to eat, and learn more about the ALGSA, a cause near and dear to our hearts. Questions? Email Julia@alagille.org Watch Team Luke's Warrior Run Promo, HERE.

Free

Caregiver Support Group

The Caregiver Support Group is a recurring monthly support group that meets virtually, rotating days and times each month to be more accessible for national and international caregivers. The participants are caregivers of patients affected by ALGS. This support group is facilitated by Dr. Al Freedman, rare disease dad and psychologist in partnership with the ALGSA.

Caregiver Support Group

The Caregiver Support Group is a recurring monthly support group that meets virtually, rotating days and times each month to be more accessible for national and international caregivers. The participants are caregivers of patients affected by ALGS. This support group is facilitated by Dr. Al Freedman, rare disease dad and psychologist in partnership with the ALGSA.

Young Adult Retreat

This Essential Health Young Adult Retreat is for adults affected by ALGS ages 18 - 30 yrs old. Hosted by the ALGSA, this event will be held near Detroit, MI, and have distinguished facilitators including Dr. David Piccoli, world-renowned ALGS expert, and Dr. Al Freedman, rare disease dad and psychologist. The Young Adult Retreat will have a series of workshops and discussion sessions in a fun and relaxed atmosphere with the goals of educating, listening, and empowering adults with Alagille Syndrome. This event is free to adults who are interested in attending via grant funding. Please click the link to apply for the event and full scholarship.