Events

June 18th, 1pm EDT –  the ALGSA offers recurring virtual monthly support groups for bereaved individuals and family members who have lost a loved one with ALGS. These groups are open internationally and are in English. Facilitated by Dr. Al Freedman, the support groups were created to offer a loving, compassionate, and safe space with a licensed psychologist and rare disease dad who understands personally and professionally. Please register for February’s support group at the link provided below in advance. We will update new monthly dates throughout the year. Please check back!

This is a support group for bereaved families affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

This is a support group for bereaved families affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

This is a support group for Adults 18+ affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

This is a support group for bereaved families affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

This is a support group for bereaved families affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

Join us for the ALGSA Panda Express Fundraiser happening the day before Alagille Syndrome Awareness Day (January 24)!Support ALGSA by placing a virtual order ONLY for pickup or delivery on January 23.Be sure to enter the special fundraiser code when ordering online so your meal counts toward the fundraiser. You can find participating Panda Express locations and the fundraiser link listed below. https://www.community-fundraiser.com/virtual-fundraiser/events/promotions/2a48594c-f934-2683-017a-027b8d20d91e/en/landing

Join us for a free, live Q&A webinar on Wednesday, March 11 with ADAA member expert, clinical psychologist, and author Dr. Jennifer Caspari to discuss her book You Are More Than Your Body. Living with chronic illness or disability can take a heavy toll on mental health, leaving many people feeling overwhelmed and disconnected from who they are beyond their diagnosis. In this session, Dr. Caspari draws on both professional expertise and lived experience to share practical, evidence-based strategies from CBT, ACT, and mindfulness. From this discussion, participants will learn how to: Respond to difficult thoughts and emotions with greater self-compassion Build emotional resilience while living with chronic stress, pain, or fatigue Reconnect with values, meaning, and present-moment awareness

A virtual session for families with loved ones with intellectual and developmental disabilities Register at link below. https://us06web.zoom.us/meeting/register/Z224yjzVTN2N5jIzplN_eA