Events

Events Search and Views Navigation

Event Views Navigation

Today

  • Caregivers Support Group

    ALGSA CAREGIVER SUPPORT GROUP

    This is a support group for bereaved families affected by Alagille Syndrome, facilitated by Dr. Al Freedman, rare disease dad and clinical psychologist.

  • Alagille Syndrome Adult Retreat 2026

    Alagille Syndrome Adult Retreat 2026 !! Applications Now Open !! We are thrilled to announce the 2nd Alagille Syndrome Adult Retreat, taking place January 22–24, 2026, in Tampa, Florida, USA. This special event welcomes US and international ALGS adults (ages 18+) for a weekend of connection, reflection, and empowerment. Travel scholarships are included for participants.  Applications are open now through November 30, 2025. Participation is limited to 25 individuals -so don't wait! https://docs.google.com/forms/d/e/1FAIpQLSf4fY8nxgFKK7H-bUDQQ9EnE6y6qANbd-jtugxADu9DD5s-9w/viewform

  • Chinese Food

    Panda Express Fundraiser

    Join us for the ALGSA Panda Express Fundraiser happening the day before Alagille Syndrome Awareness Day (January 24)!Support ALGSA by placing a virtual order ONLY for pickup or delivery on January 23.Be sure to enter the special fundraiser code when ordering online so your meal counts toward the fundraiser. You can find participating Panda Express locations and the fundraiser link listed below. https://www.community-fundraiser.com/virtual-fundraiser/events/promotions/2a48594c-f934-2683-017a-027b8d20d91e/en/landing

  • Free, Live Q&A with the Author | Wednesday, March 11 & 18 | 12 PM ET

    Join us for a free, live Q&A webinar on Wednesday, March 11 with ADAA member expert, clinical psychologist, and author Dr. Jennifer Caspari to discuss her book You Are More Than Your Body. Living with chronic illness or disability can take a heavy toll on mental health, leaving many people feeling overwhelmed and disconnected from who they are beyond their diagnosis. In this session, Dr. Caspari draws on both professional expertise and lived experience to share practical, evidence-based strategies from CBT, ACT, and mindfulness. From this discussion, participants will learn how to: Respond to difficult thoughts and emotions with greater self-compassion Build emotional resilience while living with chronic stress, pain, or fatigue Reconnect with values, meaning, and present-moment awareness

  • Special Needs Planning

    A virtual session for families with loved ones with intellectual and developmental disabilities Register at link below. https://us06web.zoom.us/meeting/register/Z224yjzVTN2N5jIzplN_eA

  • ALGSA Adult Support Group

    Register using the link below. Following registration, a Zoom link will be sent to your email.

  • ALGSA Adult Support Group

    Register using the link below. Following registration, a Zoom link will be sent to your email.

  • ALGSA Advocacy in Action

    ALGSA Advocacy in Action Thursday September 10, 2026 7:00pm - 8:30pm ET / 4:00pm - 5:30pm PT JOIN US for a dynamic panel discussion featuring accomplished rare disease advocacy leaders who bring diverse perspectives and experiences. They will discuss the evolving role of patient advocacy, from supporting patients and families to advancing research, influencing clinical development, navigating the challenges of bringing new therapies forward, and strengthening collaboration across the rare disease community. Register using the link below. Following registration, a Zoom link will be sent to your email.