Disease Education

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Alagille Syndrome Alliance
ALGSAcademy
The ALGSA has developed numerous educational resources, manuals and guides, one-page informational resources, and more which keep patients and families informed in many areas. Explore our resource library which will continue to grow as we load them into our new website over the next few weeks.

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National Organization for Rare Disorders
NORD Alagille Syndrome Explanation Video
ALGS education is crucial for understanding the unique complexity of Alagille Syndrome. The reasons behind its varying severity remain unclear, making accessible resources essential. Explore our updated library covering diagnosis, ALGS in the classroom, genetics, and more.

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Karger
Karger Learning Module for Physicians and Patients
This interactive course is designed to teach healthcare providers about the pathophysiology, diagnosis and management of Alagille Syndrome, touching on clinical advances and research directions in the field.

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HCP live
Peer Exchange: Management of ALGS
HCP Live’s 2022 educational series on Alagille Syndrome Management, featuring experts like Dr. Balistreri and Dr. Rosenthal, provides insights into diagnosis and treatment optimization for this condition.

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Rare Disease 360
Rare Disease 360 – Alagille Syndrome Channel
Rare Disease 360, ALGSA’s media partner, is a hub for rare disease information. Teaming up in 2019, they provide current insights on Alagille Syndrome for healthcare professionals through articles, case studies, and news. Explore the site for the latest on ALGS.