Subscribe to e-news

The ALGSA Annual Gala - The Dawn of a Dream - took place at the end of June. We had a great time, and we hope you enjoy viewing some pictures from the event.

Greyson’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Bryce’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Shire Plc Named Presenting Sponsor of the Gala of Dreams

WILSONVILLE, OR, May 24, 2018 — Shire Plc has been named as presenting sponsor of the ALGSA Gala of Dreams. With the help of San Diego, CA, based researcher, Dr. Duc Dong and Sanford Burnham Prebys Discovery Institute, a cure for the rare disease, Alagille Syndrome, is one step closer. The ALGSA along with Shire Plc, Albireo Pharma and Retrophin, Inc. will recognize Dr. Dong at their first annual Gala of Dreams Presented by Albireo Pharma and Shire Plc to be held June 30, 2018 at the San Diego Marriott Del Mar from 7-10pm.

Jose Luis’ ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Kayara’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Rae’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Jude’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.

Dante’s ALGS Story

Avery Glenn was a feisty, headstrong girl who lived her brief life to the fullest. She was born with a severe case of jaundice, which was the first sign of her Alagille syndrome, though she was not diagnosed for over two more years. Her primary symptoms were severe itchiness, which caused to rock and bang her head into the couch constantly, and her small size, which originally led to a diagnosis of failure to thrive.