ALGSA Jr.

ALGSA Jr.

The Alagille Syndrome Alliance provides a place for ALGS kids and ALGS teens to come together with other ALGS Warriors and siblings in a fun and welcoming atmosphere. ALGSA Jr. provides virtual platforms for gathering with resources and merchandise designed just for kids and teens!

ALGSA Jr. – Kids Being Kids

ALGSA Jr. Kids

Zooms just for ALGS Kids and Siblings Join us for virtual get togethers led by ALGS Warrior and Mom, Tara Jaques. ALGS kids and siblings get to know each other, play games, share talents, and make crafts. The next ALGSA Jr. Zoom is happening on Saturday, October 29 at 1:00pm ET US. Please see details below!

ALGS Coloring Book Download a copy of the revised ALGS Coloring Book, “ALGS and Me.” Download single pages or the entire book. Printed copies of “ALGS and Me” can be purchased from the Alagille Syndrome Alliance. COMING IN 2022

Kid’s Guide to ALGS The new Kid’s Guide to ALGS explains Alagille Syndrome in a kid-friendly way and includes resources for family, friends, and teachers. COMING IN 2022

ALGSA Jr. Merchandise ALGS kids will have their own T-shirts and other merchandise just for them! See below for ordering information!

ALGSA Jr. Teens

Zooms just for ALGS Teens and Siblings Join us for virtual get togethers specifically for teens to share experiences in a safe and loving environment.COMING IN 2022

Teens Guide to ALGS The new Teen’s Guide to ALGS explains Alagille Syndrome in teen friendly language and includes resources for family, friends, and teachers. COMING IN 2022

ALGSA Jr. Merchandise ALGS teens will have their own T-shirts and other merchandise just for them! COMING IN 2022

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ALGSA Jr. T-Shirts

Order your ALGSA Jr. T-shirt today! Available in sizes Youth XS – Adult S. Click below to order through the ALGSA Donation Page. Please add a personal note when you make the donation and indicate the size needed.  ALGSA Jr. T-Shirt Ordering

ALGSA Education Resources

We are excited to bring you three new factsheets for kids and teens through our ALGSA Jr. program! These factsheets take our original “What is Alagille Syndrome?” resource page and adjust the content just for kids! Kids and teens can use these to understand Alagille Syndrome and empower them to educate others!

Click below to download the developmentally appropriate factsheet for your child or teen!
ALGSA What is Alagille Syndrome ASJR001 PK ALGSA What is Alagille Syndrome ASJR001 PK 1 ALGSA What is Alagille Syndrome ASJR001 PK 2

Downloads

For the October Family Zoom, we are getting into the Halloween spirit! Show off your favorite costume, participate in spooky crafts and games, and show us your best moves in the Monster Mash virtual dance party! Early registrants will receive a special craft in the mail! Supply list for the Jr. zoom craft is below. Registration link at the bottom of this page!

Mason jar pumpkin craft:

  1. Old mason jar or container
  2. Orange tissue paper
  3. Black construction paper
  4. White liquid glue
  5. Scissors
  6. Disposable paint brush

Mason jar pumpkin craft step by step images

Halloween themed jokes for kids

Halloween themed word search for kids

Halloween themed word search for kids

Coloring sheet for kids featuring the major organs of the human body

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ALGSA Jr. Zoom Schedule 2022

You must register to receive the Kids Zoom links! Please email complete this REGISTRATION FORM to receive the Zoom link for the October Family Zoom.

ALGSA Jr. Kids Zoom – Saturday January 29, 2022 at 1:00pm ET US
ALGSA Jr. Kids Zoom – Saturday April 30, 2022 at 1:00pm ET US
ALGSA Jr. Family Zoom – Saturday July 30, 2022 at 1:00pm ET US
ALGSA Jr. Kids Zoom – Saturday October 29, 2022 at 1:00pm ET US

*Other special Zooms may be added throughout the year. Please check back regularly.

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“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”

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