The ALGSAwareness Ribbon
The Alagille Syndrome Alliance awareness ribbon for ALGS reflects the significantly complex and uniquely varying severity of the disease throughout our ALGS community. This ribbon recognizes those affected by just a few organ systems and those affected by all organ systems. It is our hope that we can unite, relate and empower everyone dealing with ALGS, either mild or severe,and bring together those with significant organ representation who may not focus on ALGS as a whole but rather the organ system most affected.
We want our ALGS heart families, ALGS liver families, kidney families, and vascular families struggling through their diagnoses to know we are here fighting for them. We want to impress on our community that Alagille Syndrome cannot be treated as one single problem. Together, we can fight to find the cure through researching each organ system and supporting families who relate more to one significantly affected symptom.
TheAlagille Syndrome awareness ribbon is meant to encourage our ALGS families, scientists, researchers, and donors and show the world that we cannot be separated by symptom but rather united by uniqueness.
YELLOW – for the liver and digestive system.
RED – for the heart and circulatory system.
GREEN – for the kidneys and renal system.
BLUE – for the lungs and pulmonary system.
PURPLE – for the brain and vascular system.
CREAM/PEARL – for the skeletal system.
As Alagille Syndrome affects so many systems, we want to spread the word to other communities. Our research could help others with quicker diagnosis and access to better treatments. If you are a part of any organizations or groups serving the communities of any of these systems, please share our information. Together, we can find better treatments and a cure for ALGS and other associated diseases!
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