Sharing a photograph of yourself, your child or your family is an important part of telling your story in our ALGSA community. Photographs are considered ‘personal data’ and therefore, before we share your photograph, we require a signed Photo Release. By signing this document you give ALGSA permission to edit and use your photograph on our site, in our Warrior Shop website, in our social media channels, and in our marketing and resource materials. If you have any question or concern about the Photo Release document, please don’t hesitate to contact us. You can withdraw your consent at any time by contacting us at


“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”