I’ve been involved with the ALGSA since 2005, writing “Roberta’s Ramblings”, chronicling my life as a single mother with twins, one having ALGS. I also work in Nuclear Medicine. Coming onto the board in 2013 as the Director of Communications and Outreach, I connected with the personal, emotional, unspoken, and dark aspects of dealing with ALGS. I worked tirelessly to open the doors of communication about this within the ALGS community and to bring about more support and understanding to the world we live in. As President, I’m working to ensure a more sustainable foundation within the ALGSA and will continue to bring ALGS stories and programs to those who need them. Always looking to make a better life for those living with ALGS and for my family, the future of the ALGSA, and for those who’ve passed from this complex syndrome.
Email Roberta: firstname.lastname@example.org