Coming in 2019!

The ALGSA is developing a Centers of Excellence program to recognize demonstrated excellence and outstanding achievement in research and clinical work related to ALGS. The ALGSA Centers of Excellence program will recognize Clinical Centers where there is coordinated care among a group of specialists knowledgeable about ALGS, which will allow for easier access to these specialists by individuals with ALGS and their families, as well as Researh Centers that demonstrate a strong knowledge base of ALGS by pursuing research that provides a significant contribution towards understanding the science behind the disease. The goal of the ALGSA Centers of Excellence program is to change the landscape of what is known about ALGS and how it can be managed resulting in improved quality of life and advancements in science and discovery.


“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”