• ALGSA Announces Retirement of Executive Director Cindy Luxhoj

    After 25 years of leadership and devotion, Cindy D Luxhoj, ALGSA Executive Director, will be stepping out of her role and retiring at the end of September 2018 as part of her long-term

  • The ALGS Awareness Ribbon

    We are excited to bring you the ALGS Awareness Ribbon! This multi-colored ribbon represents all of the major body systems affected by Alagille Syndrome. Each color may stand alone backed by the ALGSA. When combined, the ribbons form a strong and beautiful representation of all of our Warriors! Stand with us, and be #ALGSAware!

  • ALGSA Gala of Dreams

    The ALGSA Annual Gala - The Dawn of a Dream - took place at the end of June. We had a great time, and we hope you enjoy viewing some pictures from the event.

  • Building Better Bile Ducts Could Help ALGS Patients

    The bile ducts form a network of tubes within the liver and transfer bile produced in the liver to the bowel. In biliary disorders, this transport system fails, leading to the accumulation of toxic bile in the liver, damage, and permanent scarring (cirrhosis), which can ultimately be treated only through liver transplantation. Indeed, bile duct diseases (cholangiopathies) are the leading disorder treated (70%) by pediatric liver transplantation and account for a third of adult transplanted livers.

  • Binh Wagner Gets Donated Liver

    Michael and Johanne Wagner can’t express their gratitude enough. The couple from Kingston, Ont., broke down in tears Tuesday as they thanked an anonymous donor who made it possible for the second of their twin daughters to receive a life-saving liver transplant.

  • Children with Alagille Syndrome have malformed bile ducts

    Serious liver and heart problems can affect children with Alagille Syndrome early in life. While there is as yet no cure, researchers at Karolinska Institutet have discovered that the liver disease part of the syndrome is caused by specific malformations of the bile ducts.


“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”