ALGSA news

Keep up with the latest news on the Alagille Syndrome Alliance by checking this page regularly.  We will post the latest happenings and going on’s with ALGSA news.

  • ALGS Research Grants Call for Applications

    Alagille syndrome call for research grant proposals Full alagille syndrome research grant proposals must be received by the ALGSA no later than 5:00pm US Eastern Time April 15, 2019. We are

  • ALGSA Announces Retirement of Executive Director Cindy Luxhoj

    Retirement of executive director After 25 years of leadership and devotion, Cindy D Luxhoj, ALGSA Executive Director, will be stepping out of her role and retiring at the end of September 2018 as

  • The ALGS Awareness Ribbon

    We are excited to bring you the ALGS Awareness Ribbon! This multi-colored ribbon represents all of the major body systems affected by Alagille Syndrome. Each color may stand alone backed by the ALGSA. When combined, the ribbons form a strong and beautiful representation of all of our Warriors! Stand with us, and be #ALGSAware!

  • ALGSA Gala of Dreams

    The ALGSA Annual Gala - The Dawn of a Dream - took place at the end of June. We had a great time, and we hope you enjoy viewing some pictures from the event.

  • Building Better Bile Ducts Could Help ALGS Patients

    The bile ducts form a network of tubes within the liver and transfer bile produced in the liver to the bowel. In biliary disorders, this transport system fails, leading to the accumulation of toxic bile in the liver, damage, and permanent scarring (cirrhosis), which can ultimately be treated only through liver transplantation. Indeed, bile duct diseases (cholangiopathies) are the leading disorder treated (70%) by pediatric liver transplantation and account for a third of adult transplanted livers.

  • Binh Wagner Gets Donated Liver

    Michael and Johanne Wagner can’t express their gratitude enough. The couple from Kingston, Ont., broke down in tears Tuesday as they thanked an anonymous donor who made it possible for the second of their twin daughters to receive a life-saving liver transplant.


“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”