We are excited to bring you the ALGS Awareness Ribbon! This multi-colored ribbon represents all of the major body systems affected by Alagille Syndrome. Each color may stand alone backed by the ALGSA. When combined, the ribbons form a strong and beautiful representation of all of our Warriors! Stand with us, and be #ALGSAware!
The bile ducts form a network of tubes within the liver and transfer bile produced in the liver to the bowel. In biliary disorders, this transport system fails, leading to the accumulation of toxic bile in the liver, damage, and permanent scarring (cirrhosis), which can ultimately be treated only through liver transplantation. Indeed, bile duct diseases (cholangiopathies) are the leading disorder treated (70%) by pediatric liver transplantation and account for a third of adult transplanted livers.
Michael and Johanne Wagner can’t express their gratitude enough.
The couple from Kingston, Ont., broke down in tears Tuesday as they thanked an anonymous donor who made it possible for the second of their twin daughters to receive a life-saving liver transplant.
CHANGING LIVES TODAY
“Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”