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MEDIA2018-11-07T14:19:19+00:00

MEDIA


The ALGSA is the world’s leading resource for the Alagille Syndrome community. With connections to families, researchers and clinicians in 17 countries, our scope has increased dramatically each of our 25 years in existence.

Press Releases
1606, 2018

Shire Plc Named Presenting Sponsor of the Gala of Dreams

June 16th, 2018|

WILSONVILLE, OR, May 24, 2018 — Shire Plc has been named as presenting sponsor of the ALGSA Gala of Dreams. With the help of San Diego, CA, based researcher, Dr. Duc Dong and Sanford Burnham Prebys Discovery Institute, a cure for the rare disease, Alagille Syndrome, is one step closer. The ALGSA along with Shire Plc, Albireo Pharma and Retrophin, Inc. will recognize Dr. Dong at their first annual Gala of Dreams Presented by Albireo Pharma and Shire Plc to be held June 30, 2018 at the San Diego Marriott Del Mar from 7-10pm.

105, 2018

ALGSA Hosts First Annual Gala

May 1st, 2018|

WILSONVILLE, OR, May 1, 2018 — With the help of San Diego, CA, based researcher, Dr. Duc Dong and Sanford Burnham Prebys Discovery Institute, a cure for the rare disease, Alagille Syndrome, is one step closer. The ALGSA will recognize Dr. Dong at their first annual Gala of Dreams Presented by Albireo to be held June 30, 2018 at the San Diego Marriott Del Mar from 7-10pm.

ALGSA Press Kit Materials

ALGSA Fact Sheet


Summary of the programs the AGSA leads and supports, a brief look at ALGS and some information about where the alliance gets its funding.

ALGSA Research Sheet


Summary of info about about the ALGSA’s assets, programs, current interests and initiatives, the Global Alagille Alliance and more.

ALGSA In the News
2708, 2018

Alagille Syndrome Org Launches Multi-Colored Ribbon Awareness Project

August 27th, 2018|

SIOUX FALLS, S.D. –- A dedicated Board of Directors for an international nonprofit organization representing those who have Alagille Syndrome, a rare genetic condition that can affect the liver and other organs, recently met with the Sanford Health researcher hoping to cure their disease.

2604, 2018

Rare disease group finds advocacy and looks for answers

April 26th, 2018|

SIOUX FALLS, S.D. –- A dedicated Board of Directors for an international nonprofit organization representing those who have Alagille Syndrome, a rare genetic condition that can affect the liver and other organs, recently met with the Sanford Health researcher hoping to cure their disease.

Media Contact


Cher Bork
Executive Director
cher.bork@alagille.org

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