We would LOVE to hear from you! If you are looking for materials, phone support, resources, or guidance please don’t hesitate to contact us. We typically respond right away during business hours Monday-Friday, 9am-5pm, Pacific Standard Time. We can be reached by:
Address:
The Alagille Syndrome Alliance
P. O. Box 4216
Wilsonville, OR 97070
Telephone: 503-970-1255
General email inquiries: alagille@alagille.org
Research, conference, organization, and technical inquiries: Cindy Luxhoj, Founder and Executive Director, CLuxhoj@alagille.org
Fundraising, partnerships, sponsorships, social media inquiries: Cher Bork, Development Manager, cherbork@yahoo.com
Board of Directors, family support and opportunities, materials, website inquiries: Roberta Smith, President, maxiine@hotmail.com
