Lorena and Tomas

Meet Tomas!

El se llama tomas de 3 años..alos 10 dias de nacido se puso amarillo y fue trasladado a mar de plata la costa para estudios del por que no se iva lo amarillo tras 1 mes de internacion y estudios le destectaron sindrome de alagille !!°algo nuevo para mi y mi familia ..fue medicado con 4 medicaciones para poder controlar su prurito que llego a lastimarse !!nada hacia resultado hoy su gran problema es ese y su colesterol altisimo.esta en casa desnudo ya q la ropa le molesta mucho.y come poco ..es un nene feliz cuando no le pica ..pero es algp de todos los dias tratar q el no se rasque y pueda llevar una vida normal como un nene de 3 años.

Somos de mar de ajo y cada 3 meces llevamos a control con previos estudios de sangre a mar del plata con la hepatologa !!


His name is Tomas, 3 years old. At 10 days old he turned yellow and was transferred to Mar de Plata on the coast for studies on why the yellow did not go away after 1 month of hospitalization. The studies detected Alagille syndrome!! This was something new for me and my family. Tomas was medicated with 4 medications to be able to control his itching, which caused him to hurt himself!! Nothing worked. Today his big problem is still itching and high cholesterol. Clothes bother him, so at home he wants to be naked. He eats a lot but eats only a little. He is a happy baby when he doesn’t itch. It is hard every day to try to make sure he doesn’t scratch and can lead a normal life like a 3-year-old. We are from the sea of garlic and every 3 months we carry out blood studies to Mar del Plata with the hepatology. 

Tomas' ALGS Story

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