ALGSA Gala of Dreams – The Dawn of a Dream
On June 30, 2018, the
ALGSA celebrated many of the Champions who work tirelessly to bring our Dreams to a reality. The first annual
Gala of Dreams presented by Albireo Pharma and Shire Plc, held at the San Diego Marriott Del Mar, brought together advocates, families, doctors and pharma representatives for a very special evening. This year’s theme, The Dawn of a Dream, highlighted new advances in research for ALGS.
The 2018
ALGS Champions awarded at the event included
Mr. Mike Grey and
Ciara Kennedy, Ph.D., ALGS pioneers who began the Lumena Pay It Forward Project which funds the GALA Study. Mike and Ciara have been long-time friends of the Alliance, and we are so happy to recognize them for their dedication to
Alagille research.
Also awarded as 2018
ALGS Champions were
Mike and Catrina LaRosa of Verona, NJ. The LaRosa family is known by many in the
ALGS community as the parents of
ALGS Warrior, Mighty Micco! The LaRosas RARE Carousel of Possible Dreams team led the fundraising efforts in this year’s campaign. The funds from this year’s campaign were raised for the lab of Dr. Duc Dong at Sanford Burnham Prebys Medical Discovery Institute for his work in
ALGS research.
And speaking of our guest of honor, the
ALGSA presented
Dr. Duc Dong with a 2018
ALGS Champion award as well as a check for $11,745 to his lab at SBP. Duc is leading the way with incredible research, working toward better treatments and a cure for
ALGS!
We want to thank all who supported the 2018 Gala of Dreams!
Presenting Sponsors –
Albireo Pharma and
Shire Plc
VIP Sponsor –
Retrophin
In-Kind Sponsors –
Graphic Expressions,
San Diego Marriott Del Mar and
DJ West Coast
Special Thanks –
Sanford Burnham Prebys Medical Discovery Institute
Thank you to our silent auction contributors and the families and other attendees at our inaugural event.
Photos courtesy of Raniel Sanchez, @ranranphopho unless noted.