Formulario de asistencia para el síndrome de Alagille La Alianza del Síndrome de Alagille considera la asistencia financiera a las familias con niños, jóvenes o adultos que reciben tratamiento para el Síndrome de Alagille. El programa de asistencia ALGSA debe utilizarse como ayuda financiera durante un momento de necesidad, pero no se debe contar
Continuity of Care Form As a Global Genes RARE Foundation Alliance member, the ALGSA has received a continuity of care RARE Patient Impact Grant. Global Genes has launched this program to assist members of the rare disease community with expenses accrued as a result of COVID19 . This has lead to the formation
Alagille syndrome call for research grant proposals Full alagille syndrome research grant proposals must be received by the ALGSA no later than 5:00pm US Eastern Time April 15, 2019. We are pleased to announce that alagille syndrome research grant proposal applications are now being accepted for the ALGSA Research Grant Program
Alagille Syndrome Financial Assistance Form The Alagille Syndrome Alliance considers financial assistance to families with children, youth or adults receiving treatment for Alagille Syndrome. ALGSAssistance Program should be used as financial help during a time of need but not be counted on in any emergency situations. The ALGSA does not and will not discriminate based
Retirement of executive director After 25 years of leadership and devotion, Cindy D Luxhoj, ALGSA Executive Director, will be stepping out of her role and retiring at the end of September 2018 as part of her long-term vision as Founder of the ALGSA. Building this organization was a labor of love and continues
